The Community Engagement and Clinical Support Core facilitates and supports community-based participatory research by drawing on local community knowledge and scientific expertise to implement and evaluate culturally valid and effective approaches to research in Alaska Native communities. The functions of the core include:
- Facilitating and sustaining community/CANHR partnerships by engaging the community in all phases of the research process.
- Supporting researchers in the development and implementation of linguistically and culturally appropriate research protocols.
- Providing technical capacity to collect clinical measures and biological samples.
- Processing all biological specimens collected in the field and maintaining a secure biological storage facility for CANHR investigators and Alaska Native participants.
The CECS Core supports CANHR's central theme of community-based participatory research through strong and sustaining community partnerships with Alaska Native people.
Role: Research Technician
Role: Culture & Intervention Core Co-Leader, Field Research Coordinator
Developed a culturally relevant measure to evaluate health and wellness in Yup'ik Eskimos.
"Cuqyun (Yup'ik term for 'a measuring tool') is a developmental project linked with the long term, programmatic People Awakening research. Significant cultural adaptation of established measurement tools as well as development of new culture specific tools was required to assess variables related to alcohol, substance abuse and suicide in Alaska Native adolescents. Cuqyun's primary purpose is to test the psychometric properties of these adapted and recently developed measures with a sample of 475 AN adolescents age 13-18 years. This project also tests the predictive validity of these measures in a culturally-based model of AN sobriety and reasons for living suggested by our previous Community Based Participatory Research. This final aim will also provide a test of the multilevel pathway model of sobriety on which our preventive intervention program of research is based."
Survey of dietary and physical activity habits of Yup'ik Eskimos using 24-hour diet recalls, 3-day diet records, diet and physical activity questionnaires, and pedometry.
"Designed to establish a prevention trial to test the efficacy of the ET intervention in reducing suicide risk and co-morbid underage drinking."
Originally the Ellangneq Project: used data collected in People Awakening project to pilot test interventions in rural Alaska communities.
"This comparative, collaborative, and participatory circumpolar project aims to explore responses to rapid social transition through the life experiences of circumpolar youth."
"Designed to test the feasibility of community development based health promotion and primary prevention in rural Alaska and to explore the acceptability of this approach to Alaska Native (AN) people, specifically to Yup’ik people."
"This project will develop a way of assessing stress and trauma in a Yup’ik cultural context and more importantly how Yup’ik people find healthy ways of coping with stress and trauma."
People Awakening: Gathered life history interviews from 101 Alaska Natives who either didn't have alcohol problems or had been sober for 3 or more years.
People Awakening Resilience Program: Used data collected in People Awakening project to pilot test interventions in rural Alaska communities
Used for field measurement of Glycosylated Hemoglobin. Lab contains two of this instrument.
22 copies of this instrument available.
Allows field measurement of blood lipids (total Cholesteral, HDL, LDL, Triglycerides) & glucose. Lab contains four of this instrument.
Used for anthropometrics. Lab contains four of this instrument.
Used for recording focus groups, interviews, meetings, etc. Additional equipment includes: three microphones.
Lab contains thirty-two copies of this instrument.
Lab contains two of this instrument.
Used to create transcriptions of recordings.
Measure body Composition (Weight, BMI, percentage body fat, etc.). Lab contains four of this instrument.
Used for simultaneous translation. Lab contains two of this instrument.
Protocol for pathogen exposure. The plan objective is to identify all employees with occupational exposure, develop a schedule and method for compliance with the OSHA standards, and have a procedure for evaluating exposure incidents.
Protocol for measurements of height; weight & percent body fat; waist, hip, thigh and arm circumferences; skin fold measurements; blood pressure and pulse in human subjects.
Protocol specifying blood sampling, preparation and storage procedures in human subjects.
Specifies procedures for interfacing with rural Alaskan communities about research objectives, procedures, and results
Protocol for screening potential study participants and obtaining informed consent for participation.
"The medical record will be abstracted for all participants who consent to medical record review. The review will take place shortly after participants are enrolled in the study and will search for the study outcomes (diagnoses listed in the table below). In addition, medical record abstraction will search for medications, laboratory values, surgeries, and procedures related to the study outcomes. Participants may refuse to have their medical records reviewed."
medical charts; human subjects
All aspects of specimen processing, including storage, access, distribution, and tracking.
Arranges contact within communities in rural Alaska and facilitates data acquisition.
Assistance with communicating and returning results of studies to individuals and tribal entities in rural communities.
Services include development of interventions and design of intervention research studies
Provides assistance with logistics for field work planning, coordination and data collection
Provides consultation, development, refinement, and archiving of measurement tools
"Actiheart is a compact, chest-worn device that records heart rate, inter-beat-interval (IBI), and physical activity. Actiheart digitizes the ECG signal and determines the IBI from the R-to-R interval. Through the use of a software program, the user configures the device for data recording. At the time of configuration, the user may determine which combinations of IBI, Heart Rate, and Activity to record on board the monitor for later download. Following the recording session, the data are transferred to the computer for storage, viewing, and analysis. From the IBI recordings, the heart rate and heart rate variability parameters are calculated. Caloric expenditure can be obtained through the use of a software algorithm that combines concurrent heart rate and activity data."
Freezer inventory, sample labeling, tracking and sample management.
"When working with extended pedigrees, sets of smaller pedigrees might have been separately ascertained that are related to each other and need to be merged to generate extended pedigrees.
The purpose of PedMerge is to merge these sets of "sub-pedigrees." "
Family tree software